Paradise found

Well we just got in today from sunny florida and it did live up to its name, the sunshine state.
We had terrific weather the whole 12 days and I can honestly say this is the first real "R and R"
we have had since Tim's diagnosis. We have not been away from home for that length of time
since our wedding/honeymoon and a long vaca like that really helps you to leave
your "to do" list behind. Disney was magical and it was terrific to spend some time in the Keys
with relatives. Perfect setting, great company, real "lower your blood pressure" type stuff.
Only downfalls: Olivia looks like she has the measles as she is just covered with bug bites and I
came down with a cold for the Key Largo leg of the trip that Tim may be getting now. I'm grateful that is all. The flights were fine. I can't say I like to fly and I definitely get sweaty palms
especially during take-off but I did really well and Olivia loved it and wants to fly everywhere now. Unfortunately we have to get back to reality now. Tim has to decide about an allo transplant
and his doctor is now urging him to consider a full allo. Everytime we think we have a plan,
we get another option/suggestion thrown at us and it leaves us even more confused and over-
whelmed. This myeloma business is just one big gray area and it really stinks. It's hard to make
any kind of educated decision because the field is constantly changing and the results are not
necessarily all in on the modern treatments of this disease. I feel that the protocol Tim has already been through will be changed very soon(or already has been) and I'm frustrated with the feelings
of "wishing I knew then what I know now" as far as his induction therapy and
auto transplant goes. Can't go back. Oh well. Back to the world of errands, housework and
doctor's appts. Rats!!!

Happy April fool's day

Today marks five years since Tim quit his "day job" and became officially self-employed.
I think it is a good luck day for us. We just got the results of his second round of Vel/Dex
and his numbers are so good that if I was not so tired, I would have danced in the doctor's
office again. His M-spike is .43 and the doc actually feels this is a high estimate when his
other counts are taken into consideration. His IGG is 700. We were gonna go to Disney for
a week after this month's treatments but Tim wanted to extend it to 2 weeks so we can go to
the Florida Keys and visit his Aunt and Uncle and the doc told us to do whatever we want.
He said his numbers are so low and he responded so well that he is not worried if we mess
around with his chemo schedule to go on vacation. Yippee!! Time to blow this place for sunny
skies. I have not flown though since 1985 so this should be a hoot. I swore off the friendly
skies after a rough take-off going to LA and never flew again. We drove last time we went to
Disney but we are too darn tired to do that now. Tim will be on a Dex crash when we leave,
unless his Doc will let us nix or decrease the dex that one time so he is not so tired and I just
don't sleep well and am exhausted all the time. We lose so many days by driving, I just decided
to deal with my anxiety and fly. So if any of y'all are flying to Florida this month and see a
guy in a mask next to a woman doing yoga chanting, THAT'S US!!! My daughter will be the
brave one next to us. Tim is looking forward to some umbrella drinks at Jimmy Buffet's place.
Can't wait!!!