Wednesday, October 29, 2008

No rest for the weary

So I wrapped up going to real estate school and passed all the tests and thought
FINALLY I am gonna get back to work on my house. WRONG. I just started painting
Olivia's room(actually I started in summer and had to stop then too) and I get an e-mail from a tenant telling me she is breaking the lease
and bailing out 3 weeks before Christmas. Man I tell ya, I can't cut a break. I also
wound up being class mom for Olivia's class so I am coordinating a Halloween party
on top of things and I do not have any time to myself again. I called a gal who was very disappointed she missed renting this
apt. last spring and she and her husband loved the place and are jumping for joy. It was
rented lickity split again thank goodness but what a pain.
I'm just ticked as usual that honest people are so few and far between. I do let people out
of leases for legitimate reasons like job moves and such but this girl is just fickle and
doesn't know what she wants. I say adios to that. I've got no stomach for drama queens.
I realize that this blog has become too much personal griping and a lot of it not about
myeloma. I may be boring the socks off people reading this but to me it is great news
that I am not kvetching about MM. This is a good sign. Tim did just have labs drawn
on Monday. His doc's office is "standing room only" every time we go. We will find out
on 11/10 what the results are. I just spoke to a man on the myeloma listserv that went
to a 0 m-spike from a Velcade cocktail and stayed in remission for 5 years before needing
to address the situation again. I pray we get lucky like that. As always, I am nervous.
These appointments just stink. Again we were the youngest ones there by far and this
woman was just gawking at us and I could practically see the wheels spinning as she
tried to figure out which one of us "had it". It's pretty easy to guess. The patient is
the one with the pee jug in a plastic bag under his chair. I must say that life feels pretty
normal right now. I sometimes have to say the words to myself that Tim is in remission
because it may not be the same type of remission you can get with the more curable things
but I need to give it credit. It is a remission. So many people just can't believe how great he looks.
I'm glad for him. We just went to a very touching meeting of transplantees from HUMC where
they celebrated the people and the docs and such . A few docs spoke and then some patients.
One man was a doctor himself who'd had a transplant and started to weep during his speech. There was not a dry eye in the tent.
Unbelievably touching. Make no mistake, these transplants are miracles in many ways. And to
see this man come up and bear hug our transplant doctor was just so incredible. The doctor
had just been hanging his head at his seat because he was so overcome by the speech. This was a room(well tent in a parking lot) that was so full of love and hope and gratitude and a brotherhood(sisterhood) shared by all these people who had gone through this. Powerful stuff, I tell ya. So where
was I going with this? OH YEAH. So we see these nurses that Tim was treated by during
aphoresis and transplant and I go to the ladies room(turned out to be a porta-san, I decided
it could wait, you'd think this hospital could pull out a few stops but I guess not) anyway,
the minute I got outta site, Tim goes up to the cutest blond nurse and just had to reintroduce
himself now that he has his hair and moustache back. I walk in and she's kissing him and all.
I thought, that little sneak!!! Then I said, ya know, let him be. Who wouldn't want to show them
selves as they really look. Tim has great hair and hated losing it. I suppose I would have wanted
these gals to see me as I really am too. All the nurses at that hospital were just great too. They
were all so nice to him. The one good thing about him being young is he got a lot of attention from the nurses!! Especially on the days I ran home to do errands and see Olivia. At least I
know he was getting good care. They need to hire some ugly nurses though. Give a girl a break.

5 comments:

Kevin said...

Hope y'all get good news on the tenth. I don't know what it is about transplant nurses, but I had one that was so good looking that Ainsley insisted I get a picture with her. Whatdya mean, the patient is the guy with the pee bottle? My dear, we hard-core patients are the guys with TWO pee bottles...tell tim to step it up!

Kevin said...

oh, and hey, congrats on completing the real estate course!

tim's wife said...

TWO pee bottles!!! I don't know Kevin but it sounds to me like
you've been hittin up them 20 oz.
Belgium bad boys again!!! :)

La Cootina said...

Well, this explains why almost all MY nurses were...how shall I put this? Not hot; somewhere between tepid and cold.

I think surviving MM is all about putting one foot in front of the other, and then doing that again. It sounds like you're doing a bang-up job, even if it doesn't feel that way every single day.

P.S. I'm usually a two-bottler, too...and I'm 4'11"!

tim's wife said...

Thanks for stopping by La Cootina.
I've been reading your blog lately and it sounds like you're a
member of the "tell it like it is
club" as am I. I have also used the
"put one foot in front of the other" mantra and it is really all ya can do. I'm not sure I want to tell Tim about y'all and your two bottles thing. Pee envy can't be something one would want, methinks.
:)