Well the bad thing about things going so well is you know there's nowhere to go but down.
Tim had his first appt. in 3 months today. I was nervous as usual but this time I must say
I was worried. When he had the flu a few months ago, his white cells really dropped and at one point his CBC showed his hemoglobin as being a full point down. The nurse said don't worry about it. It was probably just from the flu but I was not convinced. When I saw his CBC, I thought GREAT. His white cells were in normal range for the first time in I don't know how
long. His HGB was back up to 13.1 and platelets were still low range of normal. Then I looked
at the rest and it showed a slight band in the IGG Kappa region. CRAP!!! I had hoped to go through this summer without appts. and with Tim being in remission. Having just found out at
the end of last summer that he was in remission, it was less than 10 months of enjoying this
good fortune. Oh well. The doc said this was nothing to get worked up about. It sounded like
he could not even be positive this was the myeloma but I don't see how. The rest of his bloodwork looked great but that damn sentence. Well, now I just hope he stays stable for
a long while and can avoid chemo. I'm disappointed. I knew it would be here eventually but
having seen people on the myeloma listserv who went 4 and 5 years from a Velcade remission,
I prayed Tim would be one of them. Gotta go.
Friday, June 12, 2009
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